Table 1 Sample eligibility criteria

• Children and Young people:

• Aged 12–24 years

• Diagnosed with SCD.

• CYP with an additional long-term condition.

• CYP who are pregnant

• CYP living in foster care.

Parent:

Mother, father or legal guardian of a young person (12–24 years) with SCD

• CYP/parents assessed by the healthcare team to be inappropriate to include in the study, e.g. recent bereavement, current child protection issues, receiving end-of-life care.

Healthcare professionals:

Providing services to young people aged 12–24 years with SCD.

• Young people (16 years and above) and parents without the capacity to consent