Table 3 Participant characteristics
CYP characteristics | Number |
|---|---|
Number of participants | 12 |
Sex | |
Male Female | 4 8 |
Ethnicity | |
Black-British (African) Black-British (Caribbean) Black African Mixed (White & African) | 5 2 4 1 |
Age | |
12–15 years 16–23 years | 5 7 |
SCD diagnosis | |
HbSS HbSC | 10 2 |
Hydroxycarbamide Exchange blood transfusion | |
Hydroxycarbamide Exchange blood transfusion | 8 2 |
Mild Moderate Severe | |
Mild Moderate Severe | 2 8 2 |
Current Educational level | |
Primary School Secondary School College Postgraduate | 4 1 6 1 |
Parent characteristics | Number |
Number | 5 |
Sex | 5 |
Female | 5 |
Ethnicity | |
Black-British (African) Black-British (Caribbean) Black African Black Caribbean | 1 1 2 1 |
Child’s SCD diagnosis | |
HbSS HbS-Beta Thalassaemia | 4 1 |
Perceived severity of child’s SCD | |
Mild Moderate Severe | 1 3 1 |
Educational level (Child) | |
Primary Secondary Special Education | 3 1 1 |
HCP characteristics | Number |
Number of participants | 10 |
Discipline/Job title | |
Consultant haematologist Specialist nurse (hospital care) Specialist nurse (community care) Clinical psychologist Specialist physiotherapist Youth worker | 1 3 1 3 1 1 |